Pam Todd

15 Articles

What the FDA’s New Social Media Guidance Means for Marketers

Little by little, and in no particular order, the FDA is rolling…

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Rare Diseases and the Promise of Genetics [VIDEO]

Sharon Moalem, MD, PhD, is not just an award-winning researcher and physician,…

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From Patient Partner to Patient Leader

Remember when patients were passive receivers of care and the only thing…

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Why Transparency Matters More Than Ever

Relationships are important in rare—and so are reputations. Rare disease communities are…

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What Patient Centricity Means to Marketers

In 2011, when Lilly and Disney teamed up to create a series…

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Hacking the Diagnosis of Rare Diseases

Ed Fennell is a problem solver. After spending 35 years running a…

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Creating Hope for Undiagnosed Patients

Most rare disease patients spend a good portion of their lives coping…

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Why Rare Disease Caregivers Inspire Me

If you want to know the heights of love, compassion, determination, and…

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New Resources That Will Help Speed Diagnosis of Rare Diseases

The rare community has made huge strides in the 30 years that…

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Diagnosis Is a Cause Everyone Can Get Behind

One of the most moving moments (and there were many of them)…

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