A New Way to Research Rare Diseases
It takes an average of nine years for a rare disease patient…
FindZebra: Rare Disease Search Engine
Physicians are trained to arrive at a medical diagnosis by starting with…
Social Media Transforming Care for Rare Disease Patients
Several years ago a member of my family was diagnosed with a…
Rare Disease Day 2013: Help Spread Awareness
Each year Rare Disease Day is celebrated worldwide on the last day…