Wendy White

8 Articles

Rare Disease: Where Precision Medicine Was Born

As the mother of a child with a rare disorder, I’ve watched…

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How Technology Will Improve the Future for Rare Diseases

Our collaboration with Global Genes and Sharon Moalem, MD, PhD at H@cking…

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Moving Towards Personalized Care with Healthcare’s Biggest Advocates

When my daughter Casey was born with nail-patella syndrome (NPS), the orthopedic…

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Supreme Court Ruling Impacts Genetic Research

On June 13, 2013, the US Supreme Court ruled that human genes…

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The Orphan Drug Renaissance

A period of a renewal of life, vigor, interest is how renaissance…

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Advocacy Group Helped Fund New FDA-Approved Orphan Drug

I like to say rare diseases are different. One key way is…

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New Mobile App Connects Duchenne Families to Clinical Trials

I have been privileged to know Pat Furlong for the past several…

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Rare Disease Day 2013: Help Spread Awareness

Each year Rare Disease Day is celebrated worldwide on the last day…

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