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cancer

The Lessons of Stuart Scott

January 7, 2015 by Andrew Schorr

Stuart Scott

Stuart Scott died January 4 at just age 49, and he is survived by daughters Sidni, 15, and Taelor, 19, who were the lights of his life. In watching and reading more about Stuart, what comes through for me is the story of a unique man who did not let cancer stop him, not once, not twice, not three times from doing what he loved—sportscasting.[read more]

How Facebook Scares Me

January 5, 2015 by Andrew Schorr

Facebook

Like any cancer survivor, I worry about what’s next. After all, I was first diagnosed 18 years ago. I stuff the fears down, but they are there. And that’s why there’s a trend on Facebook that scares me: patients who are not doing well post some of the most gruesome photos. Do we really need to see?[read more]

Navigating Cancer Faster

December 16, 2014 by Andrew Schorr

For most cancers, there are no longer “one-size-fits-all” treatment plans. And at the recent American Society of Hematology meeting in San Francisco, we heard not only that this is changing but that it is changing quickly. I almost feel sorry for the growing ranks of “nurse navigators” who will have many long nights studying just to keep up.[read more]

Personalized Medicine and a Cure for Cancer

December 10, 2014 by David Avitabile

Personalized medicine

Leading cancer doctors, researchers and members of the life sciences community are excited about the possibilities of immunotherapy in the treatment of cancer. Immunotherapy, where the body's own immune system is enlisted to fight cancer, is an example of the kinds of advances being made in personalized medicine.[read more]

Cancer Social Media: A Story of Wins and Losses

October 24, 2014 by Andrew Schorr

social media 

Social media that connects me to other people with cancer—especially the specific cancers I have dealt with—has been a godsend to me. But I have felt pain in online social media, too. And lately, in the groups I follow, there has been a lot. Between the wins and losses, there can be hope, even confidence, but there can be uncertainty, too.[read more]

My Perspective on the High Cost of Cancer Drugs

October 13, 2014 by Andrew Schorr

Cancer drugs

As more people survive cancer and remain on ongoing medicines, the U.S. has to have a fair and open discussion about the cost of cancer medicines. The high cost of one or more cancer medicines can be a clear a present danger, for some, as worrisome as the cancer itself.[read more]

Were the Beatles Wrong About "When I Am Sixty-Four"?

October 5, 2014 by Andrew Schorr

Interviewing a cancer researcher at the ESMO 2014 Congress

I am happy to tell Ringo, Paul and George that today I am 64 and feeling strong, vibrant, and not headed to living in a cottage and sitting by the fire. Too much to do! I am writing this from Madrid and the ESMO – European Society for Medical Oncology—2014 Congress, and I am happy to report there’s a lot of positive energy here.[read more]

Newlyweds Show Us How to Face Cancer Together

September 16, 2014 by Andrew Schorr

Jessica and Esteban Izquierdo

The other day, Patient Power producer Tamara Lobban-Jones gave us a terrific video love story. It’s the story of newlyweds Jessica and Esteban Izquierdo and how Jessica was diagnosed with non-Hodgkin lymphoma just weeks before their wedding.[read more]

The Benefit of Being a Vocal Cancer Patient

September 8, 2014 by Andrew Schorr

cancer patient / shutterstock

I am delighted to tell you that 850 people affected by cancer today, the vast majority of them patients themselves, recently took the time to answer our 33-question survey. No one was paid, and there was no outside sponsor. The survey was an effort of Patient Power and our research partner, Aptel Research.[read more]

Crowdfunding Cancer Research: Martin (Marty) Smith

September 2, 2014 by Janet Kennedy

Marty Smith

Martin (Marty) Smith talks to Get Social Health about the radical change in his life when he heard the words cancer and his name in the same sentence. Taking the challenge as a call to action, Marty rode a bike across America, started a business and launched not one but two crowdfunding platforms for cancer research.[read more]

Amping Up Community Dialogue

August 6, 2014 by Andrew Schorr

Patients connecting at a recent in-person forum

It has become abundantly clear that patients with cancer find great value in knowing they are not alone and having active dialogue with other patients. That’s why we are stepping up our efforts to connect Patient Power audiences with each other, per condition.[read more]

Meeting the Deductible: Cancer Drugs, Insurance and a Happy Ending

July 29, 2014 by Jeanne Pinder

Denied claims, long arguments, an eternity spent on hold arguing over a bill? Yes. But! Sometimes there are happy endings in the conversation with the billing office and the insurer. As deductibles and co-insurance rise, it’s more important than ever to know how to explore whether that bill is right or that statement is right.[read more]