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Newlyweds Show Us How to Face Cancer Together

September 16, 2014 by Andrew Schorr

Jessica and Esteban Izquierdo

The other day, Patient Power producer Tamara Lobban-Jones gave us a terrific video love story. It’s the story of newlyweds Jessica and Esteban Izquierdo and how Jessica was diagnosed with non-Hodgkin lymphoma just weeks before their wedding.[read more]

The Benefit of Being a Vocal Cancer Patient

September 8, 2014 by Andrew Schorr

cancer patient / shutterstock

I am delighted to tell you that 850 people affected by cancer today, the vast majority of them patients themselves, recently took the time to answer our 33-question survey. No one was paid, and there was no outside sponsor. The survey was an effort of Patient Power and our research partner, Aptel Research.[read more]

Crowdfunding Cancer Research: Martin (Marty) Smith

September 2, 2014 by Janet Kennedy

Marty Smith

Martin (Marty) Smith talks to Get Social Health about the radical change in his life when he heard the words cancer and his name in the same sentence. Taking the challenge as a call to action, Marty rode a bike across America, started a business and launched not one but two crowdfunding platforms for cancer research.[read more]

Amping Up Community Dialogue

August 6, 2014 by Andrew Schorr

Patients connecting at a recent in-person forum

It has become abundantly clear that patients with cancer find great value in knowing they are not alone and having active dialogue with other patients. That’s why we are stepping up our efforts to connect Patient Power audiences with each other, per condition.[read more]

Meeting the Deductible: Cancer Drugs, Insurance and a Happy Ending

July 29, 2014 by Jeanne Pinder

Denied claims, long arguments, an eternity spent on hold arguing over a bill? Yes. But! Sometimes there are happy endings in the conversation with the billing office and the insurer. As deductibles and co-insurance rise, it’s more important than ever to know how to explore whether that bill is right or that statement is right.[read more]

How to Communicate with Patients When Words Won't Work

July 14, 2014 by Joan Justice

What if you were a patient with a serious illness, alone in a hospital and you couldn’t communicate verbally with the medical staff? The feeling of loneliness and isolation on top of the emotional burden of being hospitalized with a serious illness would certainly be overwhelming.[read more]

Andrew Schorr Reporting from EHA 2014

June 28, 2014 by Andrew Schorr

Andrew Schorr

In this new video, I am reporting from Milan at EHA 2014. The atmosphere is upbeat and positive with over 10,000 clinical people and researchers from all around the world, sharing information and latest advancements in the treatment of blood related cancers.[read more]

Anxiety of Hope? Drinking from the “Fire Hose” of Cancer News

June 7, 2014 by Andrew Schorr

Carol Preston interviewing Dr. Tom Martin at ASCO 2014

This is prime season for cancer news reporting, and we'll be delivering much of that to our readers. All this brings up a question for the individual patient. How closely should you monitor all this? And if you do pay close attention to the flood of news and information, does it cause you anxiety or give you hope?[read more]

mHealth Comes to Patient Support Groups

June 3, 2014 by Joan Justice

mHealth and cancer support groups

Adolescents and young adults account for 72,000 new cancer diagnoses each year. What better than a cool mobile app to appeal to the younger generations? StupidCancer’s Instapeer is an app that works much like an online dating service.[read more]

Patients Helping Patients: Improving Health Literacy and Cancer Care

May 20, 2014 by Joan Justice

improving health literacy

ASCO recently published their paper on State of Cancer Care in America 2014. In this paper, authors outline concerns and possible courses of action. The report addresses cancer costs, increasing treatment options, growing number of cancer survivors, disparities of care and the challenges of meeting these needs and concerns.[read more]

Patient-Centered Research at the National Cancer Institute

April 29, 2014 by Joan Justice

Neeraj Arora, PhD

We think of the National Cancer Institute (NCI) as more of a biomedical research-oriented institution than a patient-centered one, but there is research being done there on patient satisfaction and patient-centeredness. Here's an interview with Neeraj Arora, a Program Director for Patient-Centered Care Research at NCI.[read more]

How Suffering May Change You for the Better

April 17, 2014 by Andrew Schorr

Pat Killingsworth

One of my mentors in the cancer world is a man named Pat Killingsworth. He has multiple myeloma. He has devoted his life to helping others with the disease and writes a daily blog. Recently, I interviewed Pat and he talked about the future as he described living on “myeloma time.”[read more]