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cancer

How to Communicate with Patients When Words Won't Work

July 14, 2014 by Joan Justice

What if you were a patient with a serious illness, alone in a hospital and you couldn’t communicate verbally with the medical staff? The feeling of loneliness and isolation on top of the emotional burden of being hospitalized with a serious illness would certainly be overwhelming.[read more]

Andrew Schorr Reporting from EHA 2014

June 28, 2014 by Andrew Schorr

Andrew Schorr

In this new video, I am reporting from Milan at EHA 2014. The atmosphere is upbeat and positive with over 10,000 clinical people and researchers from all around the world, sharing information and latest advancements in the treatment of blood related cancers.[read more]

Anxiety of Hope? Drinking from the “Fire Hose” of Cancer News

June 7, 2014 by Andrew Schorr

Carol Preston interviewing Dr. Tom Martin at ASCO 2014

This is prime season for cancer news reporting, and we'll be delivering much of that to our readers. All this brings up a question for the individual patient. How closely should you monitor all this? And if you do pay close attention to the flood of news and information, does it cause you anxiety or give you hope?[read more]

mHealth Comes to Patient Support Groups

June 3, 2014 by Joan Justice

mHealth and cancer support groups

Adolescents and young adults account for 72,000 new cancer diagnoses each year. What better than a cool mobile app to appeal to the younger generations? StupidCancer’s Instapeer is an app that works much like an online dating service.[read more]

Patients Helping Patients: Improving Health Literacy and Cancer Care

May 20, 2014 by Joan Justice

improving health literacy

ASCO recently published their paper on State of Cancer Care in America 2014. In this paper, authors outline concerns and possible courses of action. The report addresses cancer costs, increasing treatment options, growing number of cancer survivors, disparities of care and the challenges of meeting these needs and concerns.[read more]

Patient-Centered Research at the National Cancer Institute

April 29, 2014 by Joan Justice

Neeraj Arora, PhD

We think of the National Cancer Institute (NCI) as more of a biomedical research-oriented institution than a patient-centered one, but there is research being done there on patient satisfaction and patient-centeredness. Here's an interview with Neeraj Arora, a Program Director for Patient-Centered Care Research at NCI.[read more]

How Suffering May Change You for the Better

April 17, 2014 by Andrew Schorr

Pat Killingsworth

One of my mentors in the cancer world is a man named Pat Killingsworth. He has multiple myeloma. He has devoted his life to helping others with the disease and writes a daily blog. Recently, I interviewed Pat and he talked about the future as he described living on “myeloma time.”[read more]

On the Road Again for Cancer Connections

April 10, 2014 by Andrew Schorr
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web savvy patient

Over the next couple of weeks I will be traveling thousands of miles on long-distance flights to connect with other patients, in person. My personal mission is to help give voice to patients and facilitate the dialogue between patients and medical experts.[read more]

Cancer Patients' Use of the Internet for Medical Information

April 9, 2014 by Christina Thielst

cancer patients and internet use

Check out this infographic from Patient Power that collected information about cancer patients' use of the internet for medical information. Among the findings: the number one reason for searching was to stay updated on the latest news and research for their own condition.[read more]

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Patient Survey Shows How Patients Use Online Information

March 25, 2014 by Joan Justice
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patient survey

A recent survey of cancer patients by Patient Power yielded amazingly powerful results. Almost 1300 patients responded to the survey, 72% from the US and the rest from Europe, Australia, New Zealand and South America. Patients surveyed noted that they checked for online updates surprisingly often.[read more]

ESPN’s Stuart Scott: Kickboxing Cancer

March 19, 2014 by Andrew Schorr

Stuart Scott

Stuart Scott has been on ESPN since 2007. He’s one of the sport network’s most famous anchors and I hope he continues to do what he loves and what we love about him for a long time. How long that is, no one knows, but each day that he is there on screen and kickboxing at the gym is testimony that we can be stronger than cancer.[read more]

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One-on-One Cancer Support Empowers Patients

March 10, 2014 by Joan Justice

Jonny Imerman of Imermans Angels

“I've been there. I beat it. And so will you," says Jonny Imerman, cancer survivor and founder of Imerman Angels, a cancer support group that matches cancer survivors to cancer patients on a one-to-one basis. Started in 2006, Imerman Angels now has a roster of over 6,000 cancer survivor mentors and caregivers.[read more]